1 /5 Stuart Atwood: Well well well where do I start? I am in middle to late stage chronic kidney desease..originally from a dr.whom refused me a referal to a urologist.and it from urine backing up into my kidneys.So this drs.office is my third pcp in as many years as 6.After getting settled in and labs done .I found out that a renal dietician can advise me on my diet and as I have learned thru credible sources will SLOW and in most cases freeze your decline to prolong the need for DIALYSIS.SO I PHONE THE DR.OFFICE ON MAY 18TH at 2pm on a Thursday and ask them to please generate a referal for a RENAL DIETICIAN. They said i had to go to office in person to generate that referal .I droppedmy plans gor thst day and rushed to the office to have the referal done.10 days they yold me for it to go thru.iI waited~ 20 dsys and no referal.So wondering what had happened i called and blah blah blah .....bottom line that i had gathered was something to the relms of ""we did not know where to send it I cannot recall exactly where or whom that info csme from .None the less i went back on the crusade and spoke in person with the referal dept .and sent it off again .there still was a problem nut this time inland faculty group erased the eord renal and approved Dietician. mind you for the previous 2 years I have been researching diets regarding stage 3 and 4 and with hundreds of hrs. From credible sources was able to bring my remaining function of my kidneys from as low as 19% (actually it is referred to as EGFR OF 19 ) FOR CONVERSATION PURPOSES I WILL USE THE TERM % .SO FROM 19 UP TO 25 THEN UP TO 30 .ALTHOUGH 30 WAS NOT A REALISTIC NUMBER BECAUSE I WAS NOT ABLE TO SUSTAIN A HEATHY WEIGHT ON THE DIET OF NOTHING MORE THAN WSTER AND A COMBINATION OF ONLY VEGATABLES LOW IN POTASIUM ,PHOSPHOROUS AND PROTIEN ,AND I ONLY STAYED AT THAT WONDETFUL (ONLY IN MY CONDITION)maGICAL number for aweek then I plummeted down to a 23 then stabilizing at about 25 where I have been ever since.my labs should beorderd and realized every 90 days in my condition .After~ 110days had passed and I had not recieved a call from the dr office I began to worry if they ever would.thathat is an issue all its own .lets get back to my renal dietician referal being severely downgraded to just a dietician.after 2 sessions with dietician, and explaining to the dietician that I have nothing against her or the knowledge she possess, but Im pretty much up to speed with how much she can only help me .and that I need the specialist RENAL .HERE IS A FACT FIR EVERYONE FOR EVERY RENAL DIETICIAN THERE ARE AbOUT 200 dieticians.so clearly what set them apart it is the amount education : phd,board certified,state certified and 2years in a dialysis center working with dialysis Patients. Hmmm I thought wow Im trying to away from dialysis. So clearly that is what my condition requires. I am given the name of one of those special dieticians.
I do nit feel it is appropriate to mention whom.so being very frustrated from not getting the help I need .I am angry frustated and my stress level begins to take a serious toll on my already h damaged